Surgery #5

Yesterday I had surgery #5 to remove necrotic bone in the left upper jaw and left lower.  The lump I had in the left maxilla came back since the last surgery in Jan 2013. 

This time the surgery was different.  It was completed by a biological dentist while having electrodermal screening done.  The electrodermal screening provides biofeedback.  It takes the guess work out of finding the margins of the infected and/or necrotic bone, so that the doctor is more likely to remove all of the bad tissue. 

Electrodermal testing also indicated that my infection is parasitic in nature, which is why antibiotics did not stop the destruction of the bone or stop the infection.

Most likely the parasites came from sand flies.  Having lived in southern Florida for the last 16 years, sand flies are an issue on the beaches.

I; however, rarely went to the beach. I worked a lot and had a pool, no reason to go to the beach.  Just this one time I went for a photo shoot. I had completed a 5 day, 300 mile charity bike ride six weeks after having a radical hysterectomy for cervical cancer.  It was an honor and privilege to have my photos taken for "free" for the non-profit's magazine as over 1.2 million magazines are printed and distributed.  Neither the photographer or I remembered to bring bug spray.  We spent nearly 3 hours getting bitten by sand flies.  I was covered head to toe with bites.

You have seen one of these photos.  It is my favorite photo of myself.  I was strong, vibrant, energetic and unstoppable.  It is my profile picture.  It is the same picture that I look at to remember how I used to be..and it is most likely the reason I have been fighting for my life for nearly 5 years.  That "free" picture has cost me over $200,000.00 in medical bills and still counting.  Ironic... 

So now I am being treated for the parasite as well as really focusing on my diet to improve my immune system. 

I will have surgery again to the right maxilla and mandible in Oct.  And then I hope to be done with it! 

I have only made it this far though by persistence, holistic medicine, IV vitamin infusions, vitamin C, probiotics and other supplements.  If I had followed the advice of the mainstream doctors, I would have died 3 years ago.

Still fighting..

It's been quite awhile since I posted, thank you all for your comments and concerns.  I guess I was just trying to live and not fixate on the symptoms.  It's reached a point now that I can't ignore them anymore.

Like all chronic illnesses, I have good days(months) and bad ones. Right now, the bad are overriding that good.

From July 2012-Oct 2012, I was doing pretty good.  Had good energy.  Was still fighting the lump in the right posterior maxilla and it's nearly perpetual drainage, but doing well.  Somewhere around Oct  2012, the area of the left posterior maxilla, suddenly got worse and a lump developed.  I went back to Dr. Berger and had surgery on it in Jan 2013.  I wanted it removed, before it got as bad as the right is. I really thought he got the entire lump.  My energy was great for a few weeks, but, since then it's been an overall gradual decline, with a few good days to fool me in between. 

The last 2 months, I have been worse than I been in a long time, like since Dec 2010.  Several nights, I have gone to sleep wondering if I'm going to wake up the next morning.  Despite this I wake up in the morning, force myself out of bed (my bladder generally gets me up..lol..), go to work and have to pretend that I am fine.  I spent 3 weeks really dizzy, then moved onto the acidic drainage from the right maxilla making me nauseous and belching to stabbing gallbladder pain. Which thanks to this I had to have my gallbladder removed, so it shouldn't really be hurting.  Then in the last two weeks, throbbing pain in my left lower jaw that moved into a knife in my left ear and a sinus infection.  It was very weird.

And now to make a long story short, I just feel like crap and have no energy.  The lump on the right maxilla is draining, the lump on the left that was removed in Jan this year, has grown back. The left lower jaw has suddenly become worse causing me to not be able to hear much out of my left ear and I have an occasional knife in my left temple.

Yesterday I went to a biological dentist in Anacortes, WA and had Electrodermal testing done.  It was interesting and confirmed all of my problems.  (I wanted to say "I told you so", but I behaved).  It was recommended that I have surgery on all 4 areas, while they complete the Electrodermal testing to make sure that they get all of the dead or infected tissue out.  It sounds like a possible end to all of this. If I didn't feel so crappy and weary, I would be overjoyed.  They also referred me to a holistic nutritionist to help with the gallbladder and sluggish liver issues that I'm having due to the perpetual battle with all the toxins in my body and to help rebuild my immune system prior to more surgery.

So this morning I dug out some leftover antibiotics and put myself back on them so that I would make it through the work day, find some enthusiasm and have the energy to continue the fight.  I feel a little better already.  I know a holistic doctor probably would not recommend the antibiotics, but I need something to prevent me from keeling over before I hopefully finally get real help. The antibiotics aren't going to stop the disease, they haven't so far, but they do generally help give me a boost through the worst times and to be blunt, prevent me from dying or feeling like I'm on the brink.

If you were to run across me, you'd probably just think I'm a little fat (50# weight gain thanks to all this), very white (pasty,pale), but healthy middle age female.  If you were to happen to say "how are you today?"...... "I'm fine"...I'm a good faker.


Thank you for reading..I wish you the best and hope that you find good, effective treatment for the problems that you are experiencing...